Removal

Today is August 13, and I'm back home after a morning excursion downtown for my cast removal. It went smoothly, and we quickly cracked open the cast like a lobster, but I wanted to share how I've been since then. Unfortunately, I have taken many steps backward in my recovery. I can no longer walk and suffer greatly with standing. I am once again almost entirely reliant on my walker to get around by hopping, something I was previously starting to move on from in my cast, and my adventures have once again not gone farther than the living room. It is awfully disappointing. I hoped I would be better by now, but perhaps as always with what I like to call the Brewer luck, I will be stuck in an inferior state for a while longer. To make matters worse, in a disgraceful combination of my sensitive skin and my desperate attempt for itch relief in the final weeks and days of the cast, my leg and foot have become quite the eyesores. Redness and irritation, swelling, sores, bumps, and serum oozing, it's not been much of a joy to have my leg back. We expect that it may take weeks for it all to heal back to health in an excruciating process.


Regardless, after my cast was sawed off and I was properly cleaned up, I was presented with my shiny new, finished and fitted orthopedic brace picked out inexplicably by my parents while I was undergoing the surgery. Why it was done that way I have no idea, especially at my age, but I am quite pleased with their selection based on the options they described to me. Since the last brace I had years ago as a child, I've also received an excellent upgrade to higher-quality, more visually appealing, reinforced straps that are delightful. Right now, I've been instructed by my orthopedic specialist to wear my new brace night and day to maintain the stretch of my Achilles tendon. After this first month or so, he believes it will be fine to skip it at night if I wish to, something I cannot express how much I am looking forward to after great restlessness and discomfort from an extra thing on my leg all this time.

Recovery

Note: This post is the follow-up to Surgery.



We received my pre-op instructions the Friday before surgery day to shower twice before the day of with Hibicleanse, stop eating food and drinking non-clear liquids at midnight the night before, and only sip clear liquids until seven-thirty AM the morning of. We were also given our final arrival time: eight AM, updated from our original six AM timeslot that would have had us wake up as early as three-thirty in the morning. Having to be there by eight versus six meant we could sleep in much later than before, and overall made our trip to Chicago and back much more pleasant. Once we arrived, all the staff at the hospital were wonderful, I had a great time with them and my orthopedic specialist before surgery, and I was wheeled out of the pre-op room around ten forty-five en route to the operating room. I woke up in the post-op room after my surgery around twelve forty in the afternoon, and was happily eating a giant sausage pizza roll from the hospital cafeteria less than an hour later downstairs in the recovery room. Hours later, after plenty of room visits, episodes of Castle, and a brief visit from one of their physical therapists who helped me take my first few hops out of bed and showed us a few ways to get me upstairs, we left the hospital around dinner time, and picked up fast food on the way back.


Once we got home and inside, I had a lovely, extended FaceTime call with my grandmother, and in my recovery, I've been filling my newfound spare time conversing on X, playing Crossy Road on my phone and Crossy Road Castle on my old Xbox, and binging a mix of movies and television shows, from The Rookie: Feds to Destination X and America's Got Talent, A Minecraft Movie, Five Nights at Freddy's, and old The Big Bang Theory reruns. More recently into my recovery, I've also been able to make it over to my desk for short periods to play my collection of PC titles, and I've been busy drafting dozens of new blog posts in my head. My pain has actually been surprisingly tolerable from the moment I woke up in Chicago, and my idle pain when I'm just sitting there has been minimal. The only meaningful pain I've experienced has been while shifting positions or trying to put weight on my leg, which has both become almost non-existent as time has gone on. That isn't to say I don't still have pain, but it's much less common and more so when I'm putting too much strain on my leg, especially in weird positions. While awake, getting into a comfortable sitting position is relatively rudimentary for me, but sleeping has been a completely different story. For the first couple of weeks, I could only lie comfortably in a couple of hyper-specific positions, but even now, there's still a delicate art to getting and staying comfortable in my cast while horizontal. I've primarily been getting around the house by hopping with my walker, though in the past week or so, I have been able to start taking some small steps here and there. Also in the past week, I've been dealing with increasingly powerful and relentless itches inside my cast that have been incredibly difficult to alleviate. One of the recommendations we were given to deal with itching was to use a cold hair dryer to blow air into the cast, but we haven't had much success with that.


I would say the worst part of my forced staycation, aside from the occasional random outbursts of pain, is the significant hampering of what I can do, when I can do it, and where I can go, as well as my inability to be out, interacting in the world. I haven't been outside since surgery day, and inside, my travels haven't gone much farther than the living room. With that in mind, in the weekends leading up to surgery day, we kept busy attending a Dierks Bentley concert with my aunt, spending quality family time in downstate Illinois with my grandmother, and watching the sunsets with our family friends up at their Wisconsin lakehouse. With the exception of the concert, it's a pretty standard summer calendar for us, although I will admit this is the first time we've packed the festivities in so tightly. Regardless, the hospital staff weren't impressed when I said we hadn't been up to much.


The first time I stepped outside the house post-surgery was on the sixteenth to tag along while my parents coordinated bringing one of my father's dump trucks to the repair shop. It wasn't by my choice, but we did go out to dinner at Chili's afterwards for the first time in a long while. Not that I would've stayed home for much longer after that, as the following day, I had to go to a follow-up doctor's appointment with my neurologist. As for physical therapy, I had my first appointment on the twenty-third, where I was given some simple exercises to do with my leg until I can properly begin therapy once my cast gets cut off on August 13.

Surgery

On April 2, my mother received a phone call from my orthopedic specialist. He was calling with the results of a gait analysis I did back in January, where I was camera recorded and motion captured walking back and forth to create a three-dimensional, stick-like figure of how I walk. I almost wish it were a late April Fool's Day prank, but as I mentioned in To Date as a possibility for the future, I need surgery. Dubbed "heel lengthening" by my orthopedic specialist, the surgery involves making small incisions in the lower back of my leg to make cuts in my Achilles tendon in the hope that it will elongate as it heals so I can begin to walk with my right foot flat to the ground and have a much wider, more normal range of motion in it and my ankle. While under, he informed my mother that I may also need arch flattening surgery, which is when the arch of the foot requires restoration by repairing the supportive bones, ligaments, and tendons in the foot, though he advised her that he would determine that and follow through on it if necessary during my heel lengthening. He also mentioned that I'll be cast for a new orthopedic brace like the ones I used to wear when I was younger while asleep and that the surgery is outpatient, meaning I can go home the same day.


For the first six weeks post-surgery, I will be in a walking cast, and for the first week, will undoubtedly be in a lot of pain and require great assistance getting around and doing things from my parents and a pair of crutches or a walker. After the first seven days, I should mostly be able to get around on my own, albeit weighed down by the extra weight of the walking cast. Past the first six weeks, assuming the well recovery of my Achilles tendon, I'll get my cast cut off and likely go into wearing my new orthopedic brace for the foreseeable future—a wonderful additional complicating factor in shoe shopping and source of embarrassment.


I'd be lying if I said I wasn't worried. Worried about everything that could go wrong, worried about what complications the symptoms of my diagnosis could cause, and worried about the road ahead after recovery. The reason I didn't do the surgery when I was younger was because I was scared of it, and I know I'll be better off once all this is behind me, but that doesn't make the now any easier.


The surgery is scheduled for July 1, and I'm publishing this as soon as possible so that I can get all the details out in one place. I've started a countdown to the big day on my website, and if all goes to plan, I'll be rolling into the operating room as it finishes. After the surgery, I'll be sure to post a status update on how I am and how everything went on X, and I hope to share the events of the day of and afterward in my recovery in a follow-up blog post.


Update (August 3, 2025): The follow-up blog post, Recovery, is available now.